A close-up portrait of Jo Milne, her blonde hair gently framing her face as she gazes into the distance. Soft natural lighting enhances her thoughtful expression, reflecting resilience and optimism.
Jo Milne, an advocate for curing usher syndrome, stands in a striking green suit, holding her red and white cane near her face. Her cochlear implant is visible as warm lighting casts a dramatic glow, highlighting her strength and determination.
Jo Milne stands in a pink outfit, holding her red and white cane in both hands. Sunlight streams through a window, casting shadows across the backdrop, creating a powerful contrast that symbolises her journey and advocacy.

See and hear change

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See and hear change •

Jo Milne stands in a green outfit, holding her red and white cane in both hands. Against a matching green background, she gazes confidently into the distance, embodying strength and determination.

power woman

Jo Milne is a passionate advocate for people living with Usher syndrome - the genetic condition causing both hearing and sight loss that she lives with. In 2014 she underwent a cochlear implant operation which gave her the ability to hear for the first time. Her story was picked up by the world’s media and the clip of her implants being switched on was viewed by more than 12 million people.

She has dedicated her life to raising awareness and supporting those living with Usher syndrome and their families, accelerating research through the charity she founded - Cure Usher Syndrome.

As a life-long campaigner fighting for meaningful change, Jo continues to empower her audiences with her own personal journey of resilience, determination, and commitment to provide a voice for all those touched by inequality and injustice.

“by wednesday afternoon, we’re all there with you - these tears are catchin’”

‘Take Your Sweet Time’
BellX1

Jo’s implant video viewed more than 12 million times and still counting

“Usher syndrome doesn't ask for permission - It flips our world upside down, and forces us to find an inner strength we didn't even know we had.”

Book now

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Book now •

let’s chat…

Jo Milne looking confidently over the audience as she speaks to them, holding the microphone in front of her, wearing a salmon pink blouse and white cardigan, her long, blonde hair falling over her shoulders

Jo is a passionate public speaker, sharing her story with grace and parity on what it’s like to live with Usher syndrome, adapting to challenges and facing life with a determined and positive mindset.

She has guested at seminars, webinars, conferences and patient panels bringing her lifetime of unique insights on Diversity Equity Inclusion and Access (DEIA), Public and Patient Involvement and Engagement (PPIE), campaigning and maintaining a presence in public, professional and social spaces, appearing on radio, TV, film, podcasts, social and print media.

Jo has a boundless and powerful energy that inspires, connects and delivers a message of empowerment and a search for justice for those living with Usher syndrome. With humility and humour, she is a modern day warrior with power, a woman with purpose, a woman with agency - she is, Jo Milne.